My 14 year old brother, Cody, has recently been diagnosed with an extremely rare, highly aggressive form of cancer. Desmoplastic round cell tumor, also known as DSRCT, is considered a childhood cancer and predominantly affects young teenage boys. Since they do not live anywhere near a hospital that treats cancer they are going to be traveling a lot for treatment. Initial treatment will include 7-8 months of aggressive chemotherapy. My friend is running the San Diego Marathon in June and has decided to run in behalf of my brother. She has set up a site to take pledges. If anyone in interested I have attached the link below. Please feel free to share with as many friends and family as you can. My family thanks you for support and assistance. Please keep him in your prayers it is going to be a long tough battle for all of us.
3 comments:
Do you know that you have turned into the most wonderfull woman, a daughter, wife, mom ,a great friend. after almost 30 years you keep getting better !!
Thank you and Jon for putting this together. It's beyond words.
I Love You Forever !!!!
take care of each other & our grandbabies .
You are pretty amazing big sister:) I love you so much always remember!!
There are others with this disease. We have an online support group with many knowledgeble patients and caregivers who are willing to share information. You are welcome to join our group or contact any members with questions about anything. Take care,
http://www.dsrct.com/
http://health.groups.yahoo.com/group/dsrct/
http://sarcomahelp.org/dsrct.html
Patty Robertson
Mom to Nathan
Dx DSRCT 3/05
11.13.87 - 2.11.08
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